2023 Reading Challenge

We invite you to join our 2023 book reading challenge focused on death, grief, and healing.

Whether you're a seasoned death positive reader looking to boost your knowledge or a newly minted deathling looking to discover a new perspective, this challenge is for anyone who has experienced loss and is looking for comfort, understanding, and support through the written word. Choose your own reading goals and track your progress throughout the year.

Share your thoughts and feelings about the books you read with our community and get personalized recommendations from fellow readers through the #PDDCReadingChallenge hashtag on Instagram. Let's come together and find knowledge, understanding, and comfort through the power of literature.

Please note that the following are simply the first 15 suggested books for some categories. The full list is located here. We also welcome you to comment on the Google Document any books/works that we might have missed.

Caring for the caregiver and/or self-care

  1. A Bittersweet Season: Caring for Our Aging Parents and Ourselves – Jane Gross

  2. Be the Noodle: Fifty ways to be a compassionate, courageous, crazy-good caregiver – Lois Kelly

  3. The Body Is Not an Apology: The Power of Radical Self-Love – Sonya Renee Taylor

  4. Can’t We Talk About Something More Pleasant? – Roz Chast

  5. The Caregiver’s Challenge: Living, Loving, Letting Go – Maryann Schacht

  6. The Color of Care: A Beginner’s Guide for the African American Caregiver – Ky’a Jackson

  7. The Conscious Caregiver: A Mindful Approach to Caring for Your Loved One Without Losing Yourself – Linda Abbit

  8. Living with Dying — Jahnna Beecham and Katie Ortlip

  9. Late Migrations: A Natural History of Love and Loss – Margaret Renkl

  10. Multicultural Guide to Caregiving: Essential resources to help you balance traditions without losing your mind or money – Angelica Herrera Venson

  11. My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver – Martin J. Schreiber

  12. The Self-Compassion Workbook – Joy Johnson

  13. Stillpoint: A Self-Care Playbook for Caregivers to Find Ease, and Time to Breathe, and Reclaim Joy Second Edition – Sheila K. Collins, PHD, Christine Gautreaux, MSW

  14. The Sudden Caregiver: A Roadmap for Resilient Caregiving – Karen Warner Schueler

  15. Why Has Nobody Told Me This Before? – Julie Smith

Fiction - where a death worker is a character

  1. The Next Thing You Know – Jessica Strawser

  2. The Book of Two Ways – Jodi Picoult

  3. Casket Cache – Janice J. Richardson

  4. The Thoughts & Happenings of Wilfred Price, Purveyor of Superior Funerals – Wendy Jones

  5. Wild Oats – Pamela Morsi

  6. Woman of the Dead – Bernhard Aichner

  7. Madam Mortician – Tara Carr

  8. Owl’s Slumber – Nicky James

  9. Cremains of the Day – Misty Simon

  10. Mourning Wood – Heather M. Orgeron

  11. Fun Home: A Family Tragicomic – Allison Bechdel

  12. Putting Makeup on Dead People – Jen Violi

  13. Beneath the Bone Tree – Anne-Marie Keppel

  14. Life Events – Karolina Waclawiak

  15. Dear Edward – Ann Napolitano

Centered around cultural deathways

  1. Las Ceremonias Bonitas, Home Funeral Ceremonies: A primer to honor the dying and the dead with reverence, light-heartedness and grace – Donna Belk & Kateyanne Unullisi

  2. The Buried Treasures Of The Ga: Coffin Art In Ghana – Regula Tschumi

  3. The Tibetan Book of Living and Dying – Sogyal Rinpoche

  4. Anam Cara – John O’Donohue

  5. The American Book of Living and Dying – Richard Groves

  6. From Here to Eternity: Traveling the World to Find the Good Death – Caitlin Doughty

  7. Passed On: African American Mourning Stories – Karla FC Holloway

  8. Killing the Black Body – Dorothy Roberts

  9. Path of Souls: The Native American Death Journey – Gregory Little

  10. No Death, No Fear – Thich Nhat Hanh

  11. Revolutions in Sorrow: The American Experience of Death in Global Perspective – Peter N. Stearns

  12. Chinese American Death Rituals: Respecting the Ancestors – Sue Chung and Priscilla Wegars

  13. Death and the Idea of Mexico – Claudio Lomnitz

  14. The Way of American Death Revisited – Jessica Mitford

  15. Traditions of Death and Burial – Helen Frisby

Written by a deathcare provider

  1. Death Nesting – Anne-Marie Keppel

  2. Die Wise – Stephen Jenkinson

  3. Accompanying The Dying – Deanna Cochran

  4. The Art of Dying Well: A Practical Guide to a Good End of Life – Katy Butler

  5. Holding Space: On Loving, Dying, and Letting Go – Amy Wright Glenn

  6. Sacred Dying: Creating Rituals for Embracing the End of Life – Megory Anderson

  7. Reimagining Death – Lucinda Herring 

  8. Peaceful Passages – Janet Wehr RN

  9. A Beginner’s Guide to the End: Practical advice for living life and facing death – Shoshana Berger & B.J. Miller

  10. The Five Invitations: Discovering what death can teach us about living fully – Frank Ostaseski

  11. The Best Care Possible: A Physician’s Quest to Transform Care Through the End of Life – Ira Byock

  12. That Good Night: Life and Medicine in the Eleventh Hour – Sunita Puri

  13. Caring for the Dying: The Doula Approach to a Meaningful Death – Henry Ferko-Weiss

  14. Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death – Joan Halifax

  15. The Green Reaper: Memoirs of an Eco-Mortician – Elizabeth Fournier

A work of thanatology or the psychology of grief

  1. Signs: The Secret Language of the Universe – Laura Lynne Jackson

  2. Maybe You Should Talk to Someone – Lori Gottlieb

  3. The Wild Edge of Sorrow – Francis Weller

  4. Dead Girls: Essays on Surviving an American Obsession – Alice Bolin

  5. Grief is a Journey: Finding Your Path Through Loss – Kenneth Doka

  6. Ambiguous Loss: Learning to Live with Unresolved Grief – Pauline Boss

  7. Grief, Dying, & Death – Therese Rando

  8. Grief Works: Stories of Life, Death and Surviving – Julia Samuel

  9. Western Attitudes Toward Death: from the Middle Ages to the Present – Phillipe Aries

  10. Death, Dying and Grief in an Online Universe – Carla Sofka

  11. The Denial of Death – Ernest Becker

  12. The Worm at the Core – Sheldon Solomon

  13. Finding Meaning: The Sixth Stage of Grief – David Kessler

  14. Philosophy and Death: Introductory Readings – Robert J. Stainton

  15. Handbook of Thanatology: The Essential Body of Knowledge for the Study of Death, Dying, and Bereavement – David Meagher & David Balk

About the physical process of dying

  1. Gone From My Sight: The Dying Experience by Barbara Karnes

  2. Hospice & Palliative Care Handbook: Third Edition – Tina M. Marrelli

  3. The Corpse: A History – Christine Quigley

  4. Compassionate Person-Centered Care for the Dying – Bonnie Freeman

  5. Anatomy of an Illness as Perceived by the Patient – Norman Cousins

  6. Extreme Measures: Finding a better path to the end of life – Jessica Zitter MD

  7. Advice for Future Corpses (and Those Who Love Them) – Sallie Tisdale

  8. Final Gifts: Understanding the special awareness, needs, and communications of the dying – Maggie Callanan

  9. Knocking On Heaven’s Door – Katy Butler

  10. The Conversation: A Revolutionary Plan for End-of-Life Care – Angelo E. Volandes

  11. How We Die: Reflections of Life's Final Chapter – Sherwin B. Nuland

  12. Stiff: The Curious Lives of Human Cadavers – Mary Roach

  13. Modern Death: How Medicine Changed the End of Life – Haider Warraich

  14. Death’s Acre: Inside the Legendary Forensic Lab the Body Farm Where the Dead Do Tell Tales – William M. Bass

  15. The Emperor of All Maladies: A Biography of Cancer – Siddhartha Mukherjee

Written by a dying person

  1. The Unwinding of the Miracle – Julie Yip Williams

  2. When Breath Becomes Air – Paul Kalanithi

  3. Being Mortal – Atul Gawande

  4. Proof of Heaven: A neurosurgeon’s journey into the afterlife – Eben Alexander

  5. Drop by Drop – Judy Croome

  6. Dying: A Memoir – Cory Taylor

  7. The Undying – Anne Boyer

  8. Everything Happens for a Reason: And Other Lies I’ve Loved – Kate Bowler

  9. Salt In My Soul: An Unfinished Life – Mallory Smith

  10. The Bright Hour: A Memoir of Living and Dying – Nina Riggs

  11. Napkin Notes – Garth Callaghan

  12. Until I Say Goodbye: My Year of Living With Joy – Susan Spencer-Wendel

  13. The Cancer Journals – Audre Lorde

  14. The End of Your Life Book Club – Will Schwalbe

  15. The Crossover Experience: Life After Death / A New Perspective – DJ Kadagian

Fiction - where death is a character

  1. Mort – Terry Pratchett

  2. The Book Thief – Markus Zusak

  3. Gods of Jade and Shadow – Silvia Moreno-Garcia

  4. Death with Interruptions – Jose Saramago 

  5. Grave Mercy – Robin LaFevers

  6. A Dirty Job – Christopher Moore

  7. On a Pale Horse – Piers Anthony

  8. Deathless – Catherynne M. Valente 

  9. The Company of Death – Elisa Hansen 

  10. The Tiger's Wife – Téa Obreht 

  11. The End Specialist – Drew Magary 

  12. A Semi-Definitive List of Worst Nightmares – Krystal Sutherland 

  13. My Soul to Take – Rachel Vincent

  14. Inbetween – Tara A. Fuller

  15. Croak – Gina Damico

A queered death-related perspective

  1. LGTBQ-Inclusive Hospice and Palliative Care – Kimberly Acquaviva

  2. it was never going to be ok – jaye simpson

  3. You Better Be Lightning – Andrea Gibson

  4. Grief Map – Sarah Hahn Campbell

  5. The Light Streamed Beneath It: A Memoir of Grief and Celebration – Shawn Hitchins

  6. No Proper Grief: A journey of loss & resilience – Jakob Franzen

  7. A Quilt for David – Steven Reigns

  8. Queer Necropolitics – Edited By Jin Haritaworn, Adi Kuntsman, Silvia Posocco

  9. Angels in America — Tony Kushner (stage play)

  10. Under the Whispering Door – TJ Klune

  11. Queering Acts of Mourning in the Aftermath of Argentina's Dictatorship: The Performances of Blood –  Cecilia Sosa

  12. Rebellious Mourning: The Collective Work of Grief – Cindy Milstein, ed.

  13. The Dark Eclipse – A.W. Barnes

  14. Contemplative Caregiving: Finding Healing, Compassion, and Spiritual Growth Through End-of-Life Care – John Eric Baugher

  15. Partnered Grief: When Gay and Lesbian Partners Grieve Paperback – Harold Ivan Smith & Joy Johnson

Written by a griever

  1. A Very Easy Death – Simone de Beauvoir

  2. Men We Reaped: A Memoir – Jesmyn Ward

  3. The Way Through the Woods – Long Litt Woon

  4. The Year of Magical Thinking – Joan Didion

  5. Crying in H Mary – Michelle Zauner

  6. From Scratch: A Memoir of Love, Sicily, and Finding Home – Tembi Locke

  7. Shattered by Grief: Picking Up the Pieces to Become Whole Again – Claudia Coenen

  8. Let’s Take the Long Way Home – Gail Caldwell

  9. The Long Goodbye – Meghan O’Rourke

  10. The Mercy Papers – Robin Romm

  11. The Iceberg – Marion Coutts

  12. I'm Glad My Mom Died – Jennette McCurdy

  13. Sweet Sorrow – Mark Wakely

  14. Grief Healed: A Physician's Guide to Dealing with Grief and Thriving – Sona Bhatnagar

  15. Driven: A White-Knuckled Ride to Heartbreak and Back – Melissa Stephenson

Death care / grief care academic journal

  1. OMEGA - Journal of Death and Dying

  2. Death Studies Journal

  3. The Collective for Radical Death Studies Canon (see website)

  4. lambda nordica

  5. Journal of Pain and Symptom Management

  6. Markers – the scholarly journal of the Association for Gravestone Studies

  7. Thanatological Studies

  8. Whatever. A Transdisciplinary Journal of Queer Theories and Studies; Queer thanatologies issue summer 2021.

  9. Illness Crisis & Loss: SAGE Journals

  10. Journal of Loss and Trauma

  11. Journal of Personal and Interpersonal Loss

  12. Mortality

  13. Journal of Historical Sociology (selected issues)

  14. Progress in Palliative Care

  15. Readings in Aging and Death: A Contemporary Perspective

A book about ethical wills

  1. For You When I Am Gone: A Journal: A Step-By-Step Guide to Writing Your Ethical Will – Steve Leder

  2. Ethical Wills: Putting Your Values on Paper – Barry K. Baines

  3. Ethical Wills: A Modern Jewish Treasury – Jack Reimer & Nathaniel Stampfer

Written by and about PGM grieving and dying

  1. Passed On: African American Mourning Stories – Karla FC Holloway

  2. Killing the Black Body – Dorothy Roberts

  3. Grieving While Black: An antiracist take on oppression and sorrow – Breeshia Wade

  4. Dear Memory: Letters on writing, silence, and grief – Victoria Chang

  5. The World Keeps Ending, and the World Goes On – Franny Choi

  6. Postcolonial Grief: The afterlives of the Pacific Wars in the Americas – Jinah Kim

  7. One Long Listening: A memoir of grief, friendship, and spiritual care – Chenxing Han

  8. Time Is a Mother – Ocean Vuong

  9. Black Grief / White Grievance: The Politics of Loss – Juliet Hooker

  10. Grief Is Love: Living with loss – Marisa Renee Lee

  11. Black Widow – Leslie Gray Streeter

  12. Way of Wakan: Reflections on Lakota spirituality and grief – David J. Mathieu

  13. Spirit Matters: White Clay, Red Exits, Distant Others – Gordon Henry

  14. Race & the Funeral Profession: What Jessica Mitford Missed – Kami Fletcher

  15. The Pain We Carry: Healing from Complex PTSD for People of Color – Natalie Y. Gutiérrez LMFT 

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